Scott Price: Hello! I am Scott Price, President of the Spina Bifida Foundation. I serve as a National Advocate for Spina Bifida related issues and I am also the proud father of an adult son, who lives with Spina Bifida.
Spina Bifida is the most commonly occurring, permanently disabling birth defect in our country. Because of it's frequency and it's manifests; the need for spina bifida research is great. Recently, the Spina Bifida Association sponsored the First World Congress on Spina Bifida Research and Care. This international symposium was the first of it's kind to bring together, all of the various medical and surgical disabilities. They treat spina bifida to consider an international research agenda for the coming years.
Exciting new research presented during this meeting, involved the advanced methods of care and new surgical techniques intended to minimize the physical challenges of spina bifida. Much of the excellent work was also presented from those studying the potential causes of neural tube defects, like Spine bifida, both genetic and environmental. And considerable new research in spina bifida relates to a topic referred to as transition.
Essentially this involves the determination of the best practices throughout the life span, which can result in the greatest level of good health and independence from adult with spina bifida.
Everyone whose life is affected by spina bifida, takes a great interest in transition. Because it can truly translate into a better quality of life for our growing population of adults living with spina bifida. This marks an exciting new frontier in spina bifida research. For more information, please visit www.